“The conference is like a family vacation. We meet old friends and we make new friends. The connection to international researchers and clinicians gives us an impulse on what we can improve today and also provides insights and hopes on better treatments in the future.”
Father of a 11 year old girl with cystinosis
The CNE International Conference 2026 will be hosted by Cystinosis Ireland
Conference Agenda
We are delighted to share the outline agenda for the CNE International Family Conference.
The family welcome event will be on the evening of 2nd July 2026, full agenda days on 3rd & 4th July, and we will close with a family celebration dinner on the evening of 4th July. The meeting will be co-chaired by Prof Atif Awan (Children’s University Hospital, Dublin, scientific chair), Anne Marie O’Dowd (chair, CNE) and Karen McCullagh (Cystinosis Ireland, family chair).
If you are interested in attending the conference, please contact denise.dunne@cystinosis-europe.eu.
If you have already registered, you can pay your conference registration fee here.
A closed scientific meeting will take place on 2nd July. Please contact denise.dunne@cystinosis-europe.eu for details.
CNE has a limited budget available to offer financial support to attendees to travel. For details, please see here.
Please note, the agenda may be subject to change.
Translation will be provided from English to Dutch, French, German, Italian, Spanish, Turkish & Russian
Professional childcare for children up to age 12
Conference Hotel
The conference hotel is the Royal Marine Hotel, Dun Laoghaire. This family friendly hotel is on the south coast of Dublin, approximately 10km from the city centre, with excellent transport links to the city and surrounding areas. You can get from Dublin airport to the hotel using a public bus service, bookable at www.aircoach.ie, route 702. The stop closest to the hotel is Dun Laoghaire Marine Road (opposite County Hall). This stop is approximately 5 minutes walk to the hotel.
The conference will provide subsidised accommodation for families travelling to the meeting. To get these rates, please contact the hotel directly by email - reservation@royalmarine.ie using booking code FAMILY323818.
The discounted rates for family attendees will be:
Single person occupancy: €120 per room
Two person occupancy: €135 per room
Family room (room types vary): €150 per room.
These rates are per night for three nights - 2nd, 3rd and 4th July - and include breakfast.
Rooms at these rates are limited, so please book early!
Other attendees can avail of our discounted room rate of €160 per night for a single occupancy room or €175 for a two person room. Please also email reservation@royalmarine.ie and use booking code 323818.
Organising Committee
CNE is grateful for the skill, knowledge and expertise of our organising committee in developing this workshop. Those members are:
Prof Atif Awan, Consultant Paediatric Nephrologist,Children’s Hospital Ireland, scientific chair
Ms Anne Marie O’Dowd, Cystinosis Ireland board member & CNE chair
Karen McCullagh, CNE & Cystinosis Ireland board member, family chair
Dr Rachel Bishop, Assistant Professor of Ophthalmology, Johns Hopkins
Dr Ruth Davis, Cystinosis Ireland Research Committee Member
Mr James Ennis, board member Cystinosis Ireland (family programme)
Prof Dr Katharina Hohenfellner, Head of Pediatric Nephrology at the Children’s Hospital, Rosenheim.
Dr Jennifer Hollywood, School of Medicine, University College Cork
Ms Sinead Maguire, Cystinosis Ireland (family programme)
Dr Tracey McCauley, Research Manager Cystinosis Ireland
Dr Achim Treumann, Cystinosis Ireland Scientific Advisor
Dr Koenraad Veys, MD PHD, Paediatrician, Consultant in Paediatric Nephrology, KU Leuven
Ms Denise Dunne, Co-ordinator, CNE
Previous Conferences
You can find details of our previous conferences on our Conference Archive page
Sponsors
The CNE International Conference is kindly supported by unrestricted grants. Our sponsors include:
Our Conference
Filters
No results found
No results match your search. Try removing a few filters.